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SDS Events - Global

Community Calendar

מאי 2024
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14:00
Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
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Upcoming and Past Events

  • Global SDS Family Coffee Chat
    Global SDS Family Coffee Chat
    מספר תאריכים
    יום א׳, 09 ביוני
    Virtual event
    09 ביוני 2024, 15:00 – 17:00 GMT-4‎
    Virtual event
    Monthly virtual get-together to build community and support.
    שיתוף
  • Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    יום א׳, 19 במאי
    Virtual. Register at sdsalliance.org/cce
    19 במאי 2024, 14:00 – 15:00 GMT-4‎
    Virtual. Register at sdsalliance.org/cce
    שיתוף
  • SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    שבת, 13 באפר׳
    free virtual event
    13 באפר׳ 2024, 13:00 – 19:00 GMT-4‎
    free virtual event
    This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
    שיתוף
  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    שבת, 20 במאי
    Virtual event
    20 במאי 2023, 10:00 – 15:00 GMT-4‎
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
    שיתוף
  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    יום ג׳, 18 באפר׳
    Robinson College, Cambridge, UK
    18 באפר׳ 2023, 09:00 GMT-4‎ – 21 באפר׳ 2023, 13:00 GMT-4‎
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
    שיתוף
  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    יום ו׳, 24 במרץ
    Paris
    24 במרץ 2023, 9:00 – 16:00 GMT‎+1‎
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
    שיתוף
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    שבת, 30 באפר׳
    Virtual
    30 באפר׳ 2022, 12:00 – 18:00 GMT-4‎
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
    שיתוף
  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    שבת, 24 באוק׳
    Virtual run/walk, location of your choice
    24 באוק׳ 2020, 07:00 GMT-4‎ – 01 בנוב׳ 2020, 23:00 GMT-5‎
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    שיתוף
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    יום א׳, 12 ביולי
    Camp Sunshine, Cosco, ME, USA
    12 ביולי 2020, 14:00 GMT-4‎ – 16 ביולי 2020, 10:00 GMT-4‎
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
    שיתוף
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    שבת, 29 בפבר׳
    Painting with a Twist, North Andover, MA
    29 בפבר׳ 2020, 14:00 – 17:00 GMT-5‎
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    שיתוף
  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    יום א׳, 15 בספט׳
    Boston, MA
    15 בספט׳ 2019, 8:00 – 16:00 GMT-4‎
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    שיתוף
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